Genetic Alliance UK and Understanding Research teamed up to find out. They held sessions at local universities and invited members of families affected by different genetic conditions. Patients and family members were able to go behind the scenes to see the animals, the caretakers, and the researchers at work.
Visitors were pleasantly surprised by the high standards of care, the bond between the staff and the animals, the strict rules and regulations, and the honesty and candor of the research staff they encountered! Now, attendees are learning how to discuss what they learned with the public, in an attempt to explain a patient’s perspective of animals in research.
This is such a great way to get people connected with research! We often hear from people either in the field of research or far removed from it, but giving patients a better understanding of where their treatments originate could allow us to hear from a whole new type of voice.
Do you know what research led to the development of treatments that have helped you or your family members? I urge you to look into it- a better understanding of the process can only help us all!